NMDP Voice of the Community
Patients and caregivers are invited to support NMDP℠ as a Voice of the Community volunteer.
In this role, your feedback will help make sure our programs and resources meet the needs of other patients and caregivers. You can choose what type(s) of projects you’d like to participate in:
- Education (e.g., providing feedback to help us improve/create education materials. We won’t ask you to write educational materials.)
- Marketing (e.g., providing feedback on program names, outreach efforts or other promotions)
- Research (e.g., providing feedback to help create conversation guides for doctors that address common questions and concerns about clinical trials)
Eligibility
We’re looking for patients and caregivers who’ve had a significant experience with NMDP. Because this role focuses on communicating feedback, we request that volunteers:
- Read and speak English fluently
- Either:
- Received a diagnosis of a blood cancer or blood disorder
- Are the primary caregiver for someone with a blood cancer or blood disorder
There are no educational or geographical requirements for this role. Bilingual volunteers are especially encouraged to apply!
Time commitment
Each project takes roughly 30-60 minutes to complete, with volunteers being required to complete at least four projects a year. For maintenance purposes, you may be removed from the group if you don’t complete any projects in a year.
Responsibilities
For each project, you can expect us to:
- Email you projects
- Give you clear instructions and any needed materials
- Answer your questions in a timely manner
- Keep all feedback confidential
- Give you a reasonable amount of time for each project
We request that, as a volunteer, you:
- Participate in at least four projects each year
- Keep track of the time you spend volunteering
- Share your feedback honestly. You won’t hurt our feelings!
- Keep information shared by other volunteers confidential
- Tell us if your ability to volunteer changes
How to join
The first step is to fill out a form that helps us learn more about your experience and determine which types of projects you’d like to participate in.
After that, an NMDP patient education team member will email you instructions to set up a volunteer profile (this is how you’ll log your hours). You’ll also receive a volunteer handbook and two documents to sign and return.
After that, an NMDP patient education team member will email you instructions to set up a volunteer profile (this is how you’ll log your hours). You’ll also receive a volunteer handbook and two documents to sign and return.