A young boy outside in a gray sweatshirt and a blue vest with playground equipment behind him.

Your yes could be a patient’s future

Kiri was diagnosed with adrenoleukodystrophy (ALD) shortly after birth, but his family remains strong and hopeful as they search for the donor who can help him live a healthy, full life.

A family’s hope

After Kiri's diagnosis, his family discovered that none of them were a match. Now, they're actively searching for an unrelated donor and regularly participate in donor recruitment events to raise awareness. Through these efforts, they encourage others to join the registry, highlighting its potential to profoundly impact a child's life.
A young boy wearing a firefighter jacket and holding a magazine titled "Firefighters for Kiri"

Meet Kiri

Kiri is described as one of the sweetest and most caring souls. Despite his condition, he remains a happy and engaging child who loves spending time with his family. Kiri is known for being curious, snuggly, and playful, with a keen interest in sports, cars, fire trucks, and ambulances. He even aspires to be a firefighter like his dad.

Get started saving lives today: Sign up online and we’ll mail you a free swab kit. Swab your cheek, send it back and you’ll be added to the registry!

Keeping hope strong

Kiri’s treatment includes ongoing monitoring and regular check-ins with his care team as they work to find a blood stem cell donor. A recent MRI revealed that the ALD is progressing, increasing the urgency of finding a matching donor. Though a family match wasn’t found, his family remains hopeful that his life-saving match is out there—and it could be you.

Learn more about becoming a donor.


We had never heard of ALD before and no idea what we were in for.”

Jazmynn

Kiri’s mom

Give hope—register today

Kiri’s match is out there, and it might be you. Join the registry today and see if you can give a patient hope for a better tomorrow.